Parenting is a journey full of challenges and unknowns, especially when navigating special needs. It's wonderful to have a space to share our experiences and learn from each other!
One of my biggest challenges has been managing my own expectations and desires as a parent with the reality of my child's unique needs. It can be difficult to accept and adapt to these differences, especially when you're longing for a certain kind of connection or milestone achievement. Finding ways to embrace and celebrate your child's individual strengths and progress, rather than comparing them to typical development timelines, is a real challenge.
My strategy has been to focus on the small wins and celebrate each unique achievement, no matter how "small." Acknowledging and rewarding my child's progress helps me stay positive and motivated, even when the bigger picture seems overwhelming. I also find that connecting with other parents in similar situations helps me feel less alone and provides a supportive network to share strategies.
Keeping calm is definitely a challenge, especially when you're exhausted and tested beyond your limits. One tip I've found helpful is creating a "reset routine" - a quick 15-minute activity that signals a fresh start. This could be a short walk, some deep breathing exercises, or making a fun drink - something that signals to yourself that this moment is a chance to refocus and start afresh. It helps me to remember that tough moments are temporary and won't last forever.
I'd love to hear others' experiences and strategies too!